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AIDS and HIV

Congregation Kol Ami marks World AIDS Day

This year marks 40 years since the first cases of AIDS were reported in the United States

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AIDS memorial, gay news, Washington Blade
AIDS Quilt, National Mall Washington D.C. (Photo courtesy of NAMES Project)

WEST HOLLYWOOD, CA – Congregation Kol Ami marks World AIDS Day with a special interfaith observance, combining awareness, remembrance, and speaking out against HIV stigma, Wednesday, December 1, 2021 at 7:00 PM.

The national theme for the 2021 observance is “Ending the HIV Epidemic: Equitable Access, Everyone’s Voice,” and Confirmed speakers for the West Hollywood event include Dr. Michael Gottlieb, the immunologist known for being the first to identify AIDS in 1981 and who has led HIV/AIDS activism and philanthropic efforts associated with HIV/AIDS treatment since then. 

Wednesday, December 1, 2021 at 7:00 PM

at Congregation Kol Ami and online at kol-ami.org

REGISTER HERE

Other speakers include Hon. John D’Amico (West Hollywood City Council), Hon. Mitch O’Farrell (Los Angeles City Council 13th District), Rev Denyse Barnes Pastor (LaCrescenta Methodist Church LGBTQIA+ Advocacy Coordinator for the Methodist Church.), Vallerie Wagner Clinic Director, APLA Health Gleicher/Chen Health Center, Rev. Keith Cox (Center for Spiritual Living), Rev. Janice Steele (West Hollywood UCC), Rev. Keith Mozingo (MCC) and Kol Ami’s Rabbi Denise L. Eger.

AS part of the event, Congregation Kol Ami has partnered with the National AIDS Memorial and will bring panels of the AIDS Memorial Quilt to West Hollywood as part of World AIDS Day observances. It will be displayed mid-November to mid-December. The Quilt is the largest community arts project in the world.  Its first panels were created nearly 35 years ago during the darkest days of the pandemic and today, consists of 50,000 individually-sewn panels with the names of more than 110,000 people who have died of AIDS.

This year marks 40 years since the first cases of AIDS were first reported in the United States.  Dr. Gottlieb, our keynote speaker was the first to write about the symptoms in 5 people in his practice for the CDC. During that four decade span, more than 700,000 lives have been lost in this country to HIV/AIDS, with still no cure. Today, HIV is on the rise, particularly among young people, communities of color and in southern states. 

Alongside her historic work bringing LGBT acceptance to Reform Judaism, Rabbi Denise L. Eger is known for her work in the LGBT community caring for and supporting people with HIV in a commitment to “help healing the world.”  Rabbi Eger would feed those too weak to do it themselves, often removing her mask and gloves, providing a rare dose of human touch. Then she’d move to another patient and another hospital, all while she was coming out publicly.

“The early years of the AIDS epidemic was a nightmare.  A diagnosis of AIDS seemed like a certain death sentence,” Rabbi Eger says. “Better treatments, care and education have enabled People with HIV to live long lives. Our support group has continued through the years to provide support, caring, connection and Jewish community.”

Congregation Kol Ami, serving LGBTQ and allied Jews and their families in West Hollywood, was founded by Rabbi Eger during the height of the AIDS crisis. Since then, the congregation has been a prominent source of care for people living with HIV, with its HIV+ support group, the longest running Jewish support group in the nation, continuing today. It accepts new members, regardless of religion, gender expression, and sexual orientation.

This event is one of several the congregation has held throughout the year. In April, Rabbi Eger brought together community members and specialists from Israel and West Hollywood to hold a “City-to-City Dialogue” about cure and prevention of HIV.

The event is co-sponsored by Center for Spiritual Living, Founders MCC (Metropolitan Community Church) and ICAN: Israeli-American Civic Action Network.

Full list of speakers: Rabbi Denise L. Eger, Rev. Keith Cox, Dr. Michael Gottlieb, Hon. John D’Amico (West Hollywood City Council), Mr. Michael Sugar (long time survivor living with AIDS), Rev. Denyse Barnes (Pastor, LaCrescenta Methodist Church), Hon. Mitch O’Farrell (Los Angeles City Council 13th District), Rev. Janice Steele (West Hollywood UCC), Rev. Keith Mozingo (MCC).

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AIDS and HIV

Federal blood donation study recruiting gay, bi men

The study is aimed at assessing the individual risk of a gay or bisexual man transmitting HIV if they donate blood

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FDA headquarters in Silver Spring, Maryland (Photo Credit: FDA/GSA)

SILVER SPRING, Md. – Washington D.C.’s Whitman-Walker Institute and the Los Angeles LGBT Center are among LGBTQ supportive organizations in eight U.S. cities working with the nation’s three largest blood donation centers on a study to find a way to significantly ease blood donation eligibility for men who have sex with men or MSM.

The study, which is funded by the U.S. Food and Drug Administration, calls for recruiting a total of 2,000 gay and bisexual men in eight U.S. cities selected for the study to test the reliability of a detailed donor history questionnaire aimed at assessing the individual risk of a gay or bisexual man transmitting HIV if they donate blood.

A statement released by the study organizers says the questionnaire, which could be given to a gay or bisexual person showing up at a blood donation site, could be a replacement for the FDA’s current policy of banning men who have had sex with another man within the previous three months from donating blood.

In the early years of the AIDS epidemic in the 1980s, the FDA put in place a permanent ban on blood donations by men who have sex with men. In 2015, with advanced HIV testing and screening techniques readily available, the FDA lifted its permanent ban on MSM blood donations and replaced it with a 12-month restriction for sexual activity between MSM.

The FDA further reduced the time of sexual abstinence for MSM to three months in 2020.

LGBTQ rights organizations and others advocating for a change in the current FDA restriction point out that at a time when the nation is facing a severe shortage of blood donations due to the COVID pandemic, the three-month donation deferral requirement for MSM is preventing a large number of blood donations from men whose risk of HIV infection is low to nonexistent.

Under the FDA-funded and initiated study, the American Red Cross, Vitalant, and OneBlood — the nation’s three largest blood donation centers — have been conducting the questionnaire testing since the study was launched in March 2021.

“To gather the necessary data, the blood centers will partner with LGBTQ+ Centers in Washington, D.C., San Francisco, Orlando, New Orleans/Baton Rouge, Miami, Memphis, Los Angeles, and Atlanta,” the study organizers say in a statement on a website launched to help recruit volunteers for the study.

“The study will enroll a total of 2,000 gay and bisexual men (250 – 300 from each area) who meet the study eligibility criteria,” the statement says.

Among the criteria for being eligible, the statement says, is the person must be between 18 and 39 years old, have expressed an interest in donating blood, must have had sex with at least one other man in the three months before joining the study, and must agree to an HIV test. A negative test result is also required for acceptance into the study.

The study is officially named ADVANCE, which stands for Assessing Donor Variability And New Concepts in Eligibility.

“The ADVANCE study is a first step in providing data that will help the FDA determine if a donor history questionnaire based on individual risk would be as effective as time-based deferral, in reducing the risk of HIV in the blood supply,” the study organizers statement says.

“If the scientific evidence supports the use of the different questions, it could mean men who have sex with men who present to donate would be assessed based upon their own individual risk for HIV infection and not according to when their last sexual contact with another man occurred,” the statement continues. “The ADVANCE study is groundbreaking because it’s the first time a study is being conducted that could result in individual risk assessment for men who have sex with men to donate blood,” the statement says.

The Whitman-Walker Institute, which is among the community-based organizations involved in helping organize and conduct the study, is an arm of Whitman-Walker Health, the LGBTQ supportive D.C. health center.

Christopher Cannon, director of Research Operations for Whitman-Walker Institute, said that since the D.C.-based part of the study was launched early last year prior to the official announcement of the study on March 20, D.C. has surpassed the original city goal of recruiting 250 participants for the study.

“We are currently at 276 as of last Friday’s report,” Cannon told the Blade in a Jan. 13 interview. “And the current goal is now 300,” he said. “So, we’re hoping to push this over that goal line in the coming days and weeks.

Cannon said that like the community organizations involved in the study in other cities, Whitman-Walker Institute’s role has been focused on recruiting gay and bisexual men to participate in the study and to send them to the American Red Cross headquarters building at 430 17th St., N.W. near the White House. That site, which serves as a blood donation center, is also serving as the site where study participants are screened, interviewed, and presented with a detailed questionnaire.

“We promote the study within ,” Cannon said. “We promote it to our networks. We did social media promotions across the city.’

Although Whitman-Walker doesn’t have the final draft of the questionnaire being presented to study participants, Cannon said he has seen “bits and pieces” of it.  

“They ask very direct questions about the person’s sex life, sexual partners, sex acts, numbers of partners,” Cannon said. “There are questions about condom use, PrEP use, drug use. How recently have you had sex? Lots of related questions,” he said.

“It’s really about trying to figure out effectively which are the best questions,” according to Cannon. “The hope is by analyzing the questions and identifying maybe the best 10 to 12 questions that can be universally used…to get the best answers that identify the individuals that may have the highest risk,” he said. Doing that, he points, out can help determine which men who have sex with men should be eligible to safely donate blood.

A statement released by Whitman-Walker last March calls the study a “monumental research effort” that has the potential to lift the stigma imposed on gay and bisexual men whose ability to donate blood is currently based on their sexual orientation.

“The ADVANCE study is designed to understand if, by asking carefully crafted and research-informed research questions, blood collectors can screen potential blood donors for their individual HIV risk factors rather than applying a ban against sexually active gay and bisexual men,” the statement says.

“The goal is to move away from overly broad questions that exclude potential donors and spread stigmatizing messages about MSM and their HIV risks,” it says.

Cannon said that as of last week, study organizers had recruited a total of 879 study participants nationwide out of the goal of 2,000 participants needed to complete the study. He said issues related to the COVID pandemic created delays in the recruitment efforts, but study organizers were hopeful the study could be completed by this summer.

Information about participating in the study or learning more about it can be obtained at advancestudy.org.

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AIDS and HIV

Peacock will premiere HIV documentary on World AIDS Day

Drew, who was diagnosed with HIV in the late 1980’s when he was only 23 years old, was not paid for his participation in the trial

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Right to Try (2021) Peacock/NBCUniversal Television and Streaming

NEW YORK — NBCUniversal’s streaming service Peacock will premiere the documentary short “Right to Try,” which explores one man’s search to cure his HIV, Wednesday on World AIDS Day. 

The film, produced by Oscar-winning actress Octavia Spencer and directed by “The Late Late Show With James Corden” producer Zeberiah Newman, follows HIV survivor and activist Jeffrey Drew’s participation in an experimental vaccine trial. 

“We are thrilled our film ‘Right to Try’ will be seen on Peacock. Though Jeffrey Drew’s heroic journey is singular, his story is universal,” Spencer said in a statement, according to Variety. “This is an important film and with Peacock we have a wonderful partner to bring it to our audience.”

Val Boreland, EVP of content acquisitions at NBCUniversal Television and Streaming, added: “It is an honor to share Drew’s story with Peacock users and raise awareness around the important issue of HIV research. We know the impact of this documentary will be far-reaching.”

The documentary shows the side effects that Drew experienced during the early days of the trial. The coronavirus pandemic interrupted the study, as the doctor spearheading the experimental vaccine started working on the COVID-19 vaccine. 

Drew, who was diagnosed with HIV in the late 1980’s when he was only 23 years old, was not paid for his participation in the trial that a major pharmaceutical company did not fund. 

“There are people who are still getting infected and sick and dying,” he told Variety in a June interview. “I would love to see a generation that doesn’t have to think or worry about this anymore.”
“Right to Try” won the Audience Award for Documentary Short last summer at Outfest, an LGBTQ+ film festival in Los Angeles.

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AIDS and HIV

Los Angeles observes World AIDS Day with star-studded concert

Gay Men’s Chorus of Los Angeles and Juan Pablo di Pace will also be performing at the ceremony

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LOS ANGELES — As World AIDS Day is recognized around the globe, Los Angeles will mark the day with a free concert with a star-studded line-up at The Forum hosted by the AIDS Healthcare Foundation (AFA) and a ceremony at The Wall Las Memorias (TWLA) AIDS Monument in Lincoln Park Wednesday.

In a press release, the AFA said Grammy award winners Jennifer Hudson and Christina Aguilera are set to perform in front of a sold-out crowd. Emmy-nominated comedian Randy Rainbow will host the event, which will take place from 8:00 p.m. to 10:00 p.m.

In addition to the entertainment, the AFA will honor Vermont’s U.S. Sen. Bernie Sanders with a Lifetime Achievement Award and a special video presentation. The award will be accepted by his wife Jane Sanders.

“This year marks two significant milestones in the decades-long fight against HIV and AIDS: first, for the first recognition by the CDC of the virus that led to what is now known as AIDS (40 years ago, in June 1981), and second, the launch of AHF (35 years ago),” the release reads. 

TWLA’s ceremony will reveal an expanded footprint of the surrounding landscape of the country’s only publicly funded AIDS monument. The monument, created in 2004, will also add over 1,000 names of loved ones lost to AIDS to the 360-plus names already etched into it and unveil new artwork. 

TWLM Founder Richard Zaldivar, Los Angeles City Councilman Gil Cedillo and County Board of Supervisors Chair Hilda Solis are all expected to attend the event, which will start at 6:15 p.m. at 3600 N. Mission Road. According to NBC 4 Los Angeles, organizers also hope Los Angeles Mayor Eric Garcetti will be in attendance. 

Gay Men’s Chorus of Los Angeles and Juan Pablo di Pace will also be performing at the ceremony. 

World AIDS Day is observed every December 1 to raise awareness about AIDS and honor the people who have died of the disease. This year’s theme is “End inequities. End AIDS and End Pandemics.”

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