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amfAR’s Dr. Mathilde Krim dead at 91

AIDS pioneer’s life reflects LGBT/AIDS history

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Dr. Mathilde Krim, a wealthy, straight, scientific researcher who devoted her life to fighting HIV/AIDS, died on Monday (January 15, 2018) at her home in Kings Point, N.Y. at the age of 91.

“The board of trustees and staff of amfAR mourn the passing of our beloved Founding Chairman, Mathilde Krim, Ph.D. A pioneer in AIDS research and activism, Dr. Krim was at the forefront of scientific and philanthropic responses to HIV/AIDS long before the world fully understood its catastrophic global reach,” reads amfAR’s statement issued Tuesday morning.

“As amfAR’s founding chairman, and chairman of the board from 1990 to 2004, she was the heart and soul of the organization. She helped create it, supported it, kept it afloat more than once, and guided it with extraordinary dedication. She testified on Capitol Hill on several occasions, and was a driving force behind legislation that expanded access to lifesaving treatment and behind efforts to scale up federal funding for AIDS research. In August 2000, she was awarded the Presidential Medal of Freedom – the highest civilian honor in the United States,” the statement continued.

“Dr. Krim had such a profound impact on the lives of so many. While we all feel a penetrating sadness at the loss of someone we loved so deeply, it is important to remember how much she gave us and the millions for whom she dedicated her life. There is joy to be found in knowing that so many people alive today literally owe their lives to this great woman,” amfAR concluded.

New York-based Gay USA co-host and co-producer Andy Humm and longtime AIDS activist Peter Staley were the first to note Krim’s passing on their Facebook pages Monday night.

“My greatest AIDS hero died a few hours ago,” Staley wrote. “Dr. Mathilde Krim, founder of amfAR, warrior against homophobia and AIDS-related stigma, dedicated defender of science and public health, and mother-figure and mentor to countless activists, will leave a deep hole in the continued fight against AIDS — a fight she dedicated her life to. She was 91.”

“All honor to the great Dr. Mathilde Krim, founder of AmFAR (started as the AIDS Medical Foundation in 1983), who died today at 91–a giant in the fight against HIV and AIDS bringing both scientific and fundraising savvy and celebrities to the cause in the worst years of the AIDS pandemic. A tireless brilliant, calm, steady voice for healing, research, compassion and justice. Millions owe her their lives,” Humm wrote.

Krim’s passion to help people with AIDS was fueled by seeing newsreel footage as a teenager of the Nazi Holocaust during World War II. “What it did was to sensitize me against injustice. It’s really basically that—cruelty and injustice. And it’s a theme in my life,” Krim said in a 1990 interview.

”I volunteered for the [AIDS Medical Foundation] because I was incensed!” Krim said in a Nov. 1984 interview with the New York Times in her interferon laboratory at Sloan-Kettering Institute for Cancer Research, promoting the foundation’s first fundraiser—dinner and a fashion show headlined as Fashion Affair ’84. ”So many young men were dying, mostly intelligent and sophisticated young men, some of the city’s best products. And many would be dying abandoned or alone because they were afraid to contact their families.”

Krim’s life reads like a movie script with multiple odd juxtapositions—fashion, science, young gay men dying of AIDS while also being a “traditional wife” of a Hollywood studio head.

Krim was born Mathilde Galland in Cuomo, Italy in 1926. Her Swiss father was an agronomist and her mother, who was of Austrian descent, had grown up in Czechoslovakia. Her father moved the family to Geneva, Switzerland when she was 6.

As World War II started to break out in Europe, Krim heard stories about “sinister-sounding people called the Jews.” 

At one point one summer, Krim worked as a gopher in the office of a lawyer who represented the United Jewish Appeal in Geneva. She saw the influx of Jewish refugees seeking asylum in Switzerland, only to be scoffed at and turned over to the Nazi-aligned Vichy French if they had no bank accounts.

“It made me sick. I was 16, 17, you know; one is impressionable. I was indignant. I decided, ‘Oh, no, I`m not going to live in a country that does this,’” she told an interviewer in 1990.

The epiphany came one day when she saw newsreel footage about the liberation of the Nazi concentration camps. “I went home and cried and told my parents. They said, ‘Oh, it may be exaggerated; it may not all be true.’ I kept crying; I was in a state of shock. And that lasted several days. To be young and to be unprepared for something like that-it was a terrible psychological shock,” Krim said. “I had never ever seen somebody die or dead, you know, and there I see human bones-most horrible pictures-being dumped from a truck into a hole in the ground, and this kind of thing.”

”I grew up not really knowing what was going on in the camps,” Krim said in 1988, ”though I knew that there was a good deal of anti-Semitism in Europe. My parents were no worse than the others, but they were like the others.”

But the “idea that people of my society were responsible for what had happened—it was very shocking to me. And I became very interested in knowing who were those Jews whom everybody had been after. Because I heard those terrible stories, that they were exploiting others, and I wanted to see for myself.”

In 1945, Krim went to the University of Geneva and met Jews from British-controlled Palestine. ”They were totally different from what I was told,” she said. ”I thought, ‘My God, if anything, I want to be like them.’ ”

Mathilde converted to Judaism and started working with a militant anti-British underground movement called the Irgun, run by a radical Zionist named Menachem Begin. Mathilde helped smuggle weapons to Begin from old French Resistance sympathizers. (When Begin became Israeli prime minister years later, he would be Krim’s houseguest.)

During this time, Krim studied biology in Geneva and, in 1953, received her Ph.D. She also fell in love with fellow Jewish radical David Danon and took his medical courses when he was away. The couple married and moved to Israel in early 1953. “We were in perfect harmony as long as the world was against us. But as soon as the pressure was off, we divorced,” she said

(Photo courtesy amfAR)

Krim became a junior researcher at the Weizmann Institute of Science and in 1956 was asked to give a tour to a honcho on the institute’s board of directors—New York movie executive Arthur Krim. They married in 1958 and moved to New York. Krim’s 7-year old daughter Daphna adjusted better than her mother. But eventually, Krim found a job at Cornell University Medical School where she studied virology, with the added benefit of being able to speak German, French, Italian, English, Hebrew and ”some Spanish.”

(Photo courtesy amfAR)

In 1962, Krim transferred to Sloan Kettering to pursue research into whether cancer might be caused by viruses. Her lawyer husband Arthur Krim, meanwhile, became chair of Orion Pictures and a prominent Democratic fundraiser and senior advisor to three Presidents—John F. Kennedy, Lyndon B. Johnson and Jimmy Carter. Mathilde Krim was the gracious hostess in their art-filled townhouse on East 69th Street when a president or presidential contenders such as Walter Mondale held court or stayed over.

Krim with Harry Belafonte. (Photo courtesy amfAR)

Her husband was also a big fan of Democrat intellectual Adlai Stevenson, which spurred the couple’s interest in the civil rights movement in the US and Africa. With her passion to fight injustice, Krim became a member of the Congress on Racial Equality (CORE) and in 1966, joined the National Urban League. Meanwhile, from 1966 to 1968, Arthur Krim served as chair of the Democratic National Finance Committee.

By 1970, while writing a research report for a panel studying the history of cancer—a report that played a significant role in passage the National Cancer Act of 1971—Krim discovered an account of interferon, “a naturally occurring protein that seemed to ‘interfere’ with viruses, including those that caused tumors. Some experiments even indicated that interferon was effective against the tumors themselves,” according to the New York Times.

Krim was hooked on the possibility that interferon could lead to a more humane biological treatment for cancer, though other researchers were considerably less impressed, calling it ”imaginon,” accusing her of letting her heart rule her head. She was soon dubbed the Interferon Queen—a nicknamed she earned, using guile to get funding from the National Cancer Institute after being turned down. In 1975, she convinced the institute to sponsor an international conference on interferon and the night before she and her Hollywood-connected husband threw a party for 100 at their swank Manhattan townhouse.

”She more or less singlehandedly rescued the field from oblivion,” Martin S. Hirsch, an interferon expert at Massachusetts General Hospital, told the New York Times.

The institute gave her funding, as did the American Cancer Society, and by 1981, Krim had $6 million for her research, in addition to what she could raise from outside foundations and donors. Though touted as a possible cancer breakthrough, the research initially yielded mostly disappointments, treating only a rare form of leukemia. Her reputation as a detached scientist was questioned.

‘I probably could have done more if I had a husband less involved in things,” Krim told The New York Times in 1984.  “Research is such a competitive life, and most of my colleagues are men who have wives who do everything at home. I know if I have to give a dinner for 100 people and be all dressed up and have my hair done, I can’t concentrate completely on my work.”

But in 1980, Krim’s attention was diverted by mysterious symptoms impacting patients of her research colleague, Dr. Joseph Sonnabend, who practiced medicine in Greenwich Village. Gay men were coming to him with enlarged lymph nodes, enlarged spleens and infections that failed to respond to treatment—and they had seriously compromised immune systems.

“Clearly, it was a biological infectious agent that was causing this disease and we also concluded that it must be sexually transmissible. My friend started using his medical practice as a source of clinical (blood) samples; he would send them around to experts to try to find another link, but nobody would figure out anything,” Krim later recalled.  “In the spring of `81 Dr. Sonnabend came to tell us that some of his patients were dying, and our research activities were intensified.”

(Photo courtesy amfAR)

By then, Krim was the director of the interferon laboratory at Sloan-Kettering. “It was totally mind-blowing for a scientist who thinks she knows something to realize that, here in the middle of New York in the 20th century, a new disease could occur,” Krim said.  “I personally didn’t believe for a minute that being gay could cause it. It was a scientific and medical puzzle that attracted my attention.”

Krim and Sonnabend worried that the mysterious disease was spreading but no one seemed to listen. The disease was killing those who “deserved it.”

Michael Callen, Dr. Mathilde Krim, Dr. Joseph Sonnabend. (Photo Peter Serling courtesy Sean Strub)

Though her husband had gay friends, Krim told POZ Magazine, “I knew nothing about the gay community in 1981. Dr. Joseph Sonnabend sent me his patients, including Michael Callen, who told me what gay life was. That was quite an education! I was disgusted by the way society accused gay men of having created something terrible. When you think of it, the promiscuous life was caused by society—it didn’t allow gay men to get married or to have honest relationships. They had to hide.”

Krim’s compassion and hatred of injustice set in.

“In those early days, they were literally dying in the streets,” Krim told the Los Angeles Times in 2000.  “[Gay men who had AIDS] lost their jobs, their apartments–their families turned away from them. It turned my stomach, it really impacted me and I decided this was something not to be tolerated.”

Unable to raise funding for their research, the colleagues decided to start their own organization in June 1983. The AIDS Medical Foundation (AMF) was co-founded by Krim—then 57 years old—Sonnabend, Nobel-prize winning scientist Dr. David Baltimore, singer, Sonnabend patient and AIDS activist Michael Callen (co-founder with fellow Sonnabend patient Richard Berkowitz of the People with AIDS Coalition), and respected philanthropist Mary Lasker.

The foundation was created to serve as a “scientific venture capitalist” to give provide seed money to researchers and scientists with promising AIDS-related projects that had been turned down for government grants. They wanted to be the AIDS version of the American Cancer Society. Arthur Krim kicked in the first $100,000 and within 90 days, Mathilde Krim had raised an additional $550,000. She also continued her interferon research, oversaw AMF operations, visited hospitals and clinics, and hosted fundraisers. Nothing was easy with efforts hampered by stigma. The AIDS Medical Foundation could not even list its full name in the lobby index in the Helmsley Building at 230 Park Avenue, having to list its office as A.M. Foundation.

Working together wasn’t easy, either. When Callen and Berkowitz wrote the first risk-reduction pamphlet under Sonnabend’s oversight entitled “How to Have Sex in an Epidenic: One Approach” espousing condom use, they approached Krim about publishing the safe sex guide through AMF. However, POZ founder Sean Strub writes in his book Body Counts, “Krim balked, fearing the frank language about anal sex was too risqué and would turn off potential donors. She did agree to let the foundation serve as a fiscal pass-through, so donations to print it would be tax-deductible.”

It was a serious concern, with donors from large corporations and Wall Street investment houses buying into the mythology of homosexuality.

”They felt that this was a disease that resulted from a sleazy life style, drugs or kinky sex—that certain people had learned their lesson and it served them right,” Krim told the New York Times in 1988.
”That was the attitude, even on the part of respectable foundations that are supposed to be concerned about human welfare.”

It sounded like the anti-Semitic propaganda she heard about Jews from the Nazis and Nazi sympathizers. ”I thought we had to enlarge our board and diversify—load it with straight people so that it’s not one more gay organization,” she said. To that end, she brought on board Elizabeth Kummerfeld, whose husband, Donald D. Kummerfeld, was president of Magazine Publishers of America. They set about planning for a $150-a-ticket November 1984 fashion show at the Tower Gallery, 45 West 18th Street, for which 50 designers, including Pauline Trigere, Bill Blass, Zandra Rhodes, Adolfo, Galanos and Calvin Klein, and other designers agreed to donate dresses and gowns. The show as narrated by Arlene Francis, followed by an auction and a buffet planned by Craig Claiborne. Former First Lady Rosalynn Carter, a friend of the Krims, attended.

President Jimmy Carter and Mathilde Krim. (Photo courtesy amfAR)

Funding for Sonnabend’s research and perhaps a clinic was imperative. “We need such a clinic,” Krim told the New York Times in 1984, ”because it’s a place where patients can come without fear of discrimination. We deal with a population afraid of discriminatory practices, and that is not only gay men but drug users as well.”

The AIDS situation as ”very worrisome,” she continued. ”It’s not going to remain in the high- risk groups. All the evidence shows the disease is spreading in all directions, but people just aren’t worried anymore.”

At the same time, on the other side of the country in Los Angeles, pioneering AIDS researcher and immunologist Dr. Michael Gottlieb, was working with actress Elizabeth Taylor to create a foundation using $250,000 in start-up funding contributed by the late actor Rock Hudson, close friend of Taylor’s and a patient of Gottlieb’s. Krim called them about joining their efforts in the summer of 1985.

“Elizabeth Taylor and others were forming a like-minded organization on the West Coast, and I went out to visit her. She invited me to her house, and was immediately interested in working together, so we joined our organizations to form the American Foundation for AIDS Research,” Krim said in a 2015 interview. “From then on, Elizabeth dedicated herself to doing public speaking and even testifying in front of Congress.”

‘It was a shotgun marriage,” Gottlieb told Vanity Fair in 1992, a marriage of necessity between science and show business.

Dr. Mathilde Krim and Dame Elizabeth Taylor. (Photo courtesy amfAR)

“It did occur to me that having AmFAR on the East and West coasts might dilute it,” Taylor said. “Then I realized that Mathilde is a very powerful lady with a background that couldn’t have been more suitable. So it seemed like a very large and powerful decision.”

Mathilde Krim is “a smart woman and one of the most powerful I’ve ever met,” says Bill Misenhimer, who became amFAR’s first executive director, told the magazine. “You don’t fight her because she always wins. And AIDS is her life.”

“We complement each other very well,” Krim told VF, shrugging off questions about clashes. “I have a professional education in biology and medicine, and because I’m not a public figure I can work at the desk long hours. I mind the shop. Elizabeth contributes to projecting an image of the organization. She deals with the public very well.”

That was a quick lesson learned for the new national organization when Taylor appeared at the second amFAR fashion show in 1985 in Jacob K. Javits Convention Center in New York City. “We’d dutifully set in place security protection, but we didn’t make sufficient arrangements,” Krim recalled. “We didn’t realize she’d be mobbed by the crowd. She was atop a staircase with all the paparazzi and the public pushing behind—they almost threw her down.”

While Krim was gaining momentum with AMF, she was being unfavorably scrutinized at Sloan-Kettering by new president Paul A. Marks.

”I was told very clearly that I should tone down my visibility,” Krim told the NYT in 1988.  ”He didn’t want his institute to become known as an AIDS hospital. Bad blood developed and at one point I decided, ‘This is enough.’”

(A spokesperson told the NYT that Sloan-Kettering continued to contribute to research on AIDS and interferon therapy.)

Krim at work in laboratory. (Photo courtesy amfar)

Krim left Sloan-Kettering in 1985 and subsequently became an associate research scientist at St. Luke’s-Roosevelt. But she was finished as a research scientist. In 2000, the Los Angeles Times noted that her besmirched, dogged research into interferon were vindicated: “Interferon has proved effective in inducing remissions in hairy-cell leukemia, and now is used to treat a long list of serious maladies: bladder cancer, renal cell cancer, hepatitis C, malignant melanoma, multiple myeloma, non-Hodgkin’s lymphoma and Kaposi’s sarcoma.”

Serving as AmFAR’s board chair suited her. ”I came to the conclusion that it’s better if I stay on the outside and help people inside the labs,” she said. ”I’m not such a genius that somebody else cannot do what I was doing. And these would be people who cannot do what I can.”

But Krim was able to use that scientific knowledge to challenge important issues that others took as fact. One of the most critical examples was in 1986—before ACT UP—when she took on the medical establishment over the testing of AZT. Per protocol, half the test subjects were given placebos, which Krim concluded would mean the placebo group could possible die by the time the effectiveness of the drug was determined. Though not a cure and saddled with harmful side effects, at least AZT could extend the dying person’s life for a few months.

”People who are on their last legs should get anything they want,” she said. ”We should just make sure we’re not killing them with it.”

Krim testfied before Congress that she opposed placebos in “double-blind” drug trials for people with full-blown AIDS. She lost out to two powerful opponents—National Cancer Institute top AIDS drug expert Samuel Broder and NIH AIDS research coordinator Anthony S. Fauci. But she eventually helped convince the NIH two years later to stop using placebos and to use AZT as the control instead. Additionally, Broder joined AmFAR’s scientific advisory committee, helping determine who gets grants.

One of amFAR’s biggest nights was the appearance of President Ronald Reagan, who had been invited by Taylor to speak at the benefit where Surgeon General Koop was among the honorees. It was Reagan’s second term in office and he had not yet addressed the AIDS epidemic. The benefit was the night before the third international conference on AIDS in Washington.

”He and his advisers must have thought that this was a good opportunity to appear in public in front of people who would behave reasonably well,” Krim told the New York Times in 1988.

Krim with Senator Mervyn F. Silverman and Ted Kennedy. (Photo courtesy amfAR)

A Presidential speechwriter talked to AmFAR’s president Mervyn F. Silverman, who suggested that Reagan stress compassion and avoid the controversial systematic testing for the AIDS virus.

”The President said some of the right things, but he chose to mention testing,” Krim said. ”So that was the undoing of the rest of his speech. Even in our audience some people resented it, and he was in fact hissed, which was not the polite thing to do. But he should have known better.”

In fact, that May 31, 1987 speech contained harsh words reflective of his religious right domestic policy base. As of April 1987, the Centers for Disease Control reported 33,997 cases of AIDS in the US, with 19,658 deaths, no cure and the pall of stigma hanging over the country.

“If a person has reason to believe that he or she may be a carrier, that person has a moral duty to be tested for AIDS; human decency requires it. And the reason is very simple: Innocent people are being infected by this virus, and some of them are going to acquire AIDS and die,” Reagan said. “I’ve asked the Department of Health and Human Services to determine as soon as possible the extent to which the AIDS virus has penetrated our society and to predict its future dimensions.”

He said the AIDS immigration ban, testing for all federal prisoners, and possibly testing of veterans, “in addition to the testing already underway in our military and foreign service.”

“[Reagan’s speechwriters] didn’t know anything about AIDS, so we wrote the first half of the speech, where Reagan talked about compassion, justice, care — all the right things,” Krim told Vanity Fair. “We asked them to please not talk about mandatory testing, because it was not recommended scientifically, legally, or medically. We said it would elicit a furious reaction from the public. But one of Reagan’s advisers revised the speech and put it in.”

“The president mentioned mandatory testing and people jumped out of their seats. Then they started heckling him, so I jumped up and said, ‘Don’t be rude. This is your president and he is our guest,’” Taylor told the magazine.

Krim stuck with amFar until 2005 when she stepped down as founding chair, having helped build the organization into a prominent private supporter of AIDS research. Michael Musto wrote in POZ magazine,  “As Dr. Mathilde Krim ‘a.k.a. the Mother of AIDS advocacy’ passes the amfAR torch to classy designer Kenneth Cole, her once-great institution may claim it’s not losing a legend but gaining a brand name. But can its new leader see past the bottom line to make amfAR not only fashionable but relevant again?”
amfAR would argue they are exceedingly relevant with their latest grants to three young scientists  working on new HIV treatments and “leveraging vaccine research to help cure HIV.”

Krim does not leave this earth a saint—she disagreed with Taylor about going international, for instance, a debate Taylor won with the organization being renamed the Foundation for AIDS Research (amfAR, versus amFAR). To date amfAR has raised and invested an estimated $517 million for thousands of programs, according to the New York Times obituary on Krim.

And Taylor was not the only one with whom Krim disagreed, especially over political issues. In 1990, New York Mayor David N. Dinkins asked Krim about naming a city health commissioner. Krim recommended Indiana’s commissioner, Dr. Woodrow A. Myers Jr., who advocated names-reporting and possible quarantining of people with AIDS. Krim and others thought about it, stepped back, then re-endorsed Myers, then withdrew the endorsement. Myers was eventually appointed anyway and Krim was out in the cold.

“I think she’s exceptionally naïve politically,” playwright Larry Kramer told The Times. “We are all very angry with her, so far as one can ever get angry with Mathilde, because we love her so.”

Krim receives honor from President Bill Clinton. (Photo courtesy amfAR)

But in 2000, Krim received the Presidential Medal of Freedom from President Clinton for her decades of AIDS-related work. And the National Portrait Gallery accepted two photographic portraits of Krim into its permanent collection in recognition of her leadership in the fight against HIV/AIDS—portraits by leading American photographers Annie Leibovitz and Joyce Tenneson.

”Everybody thinks of at least one person whom he has lost or is afraid for,” Krim told the New York Times in 1988. ”And I am no different. I have my little list.”

And now it’s Mathilde Krim who is on the list of AIDS heroes who have died.

“Dr. Krim was a close friend and mentor, and I am deeply saddened by this news. She dedicated her life to understanding the science behind the epidemic, and was a force to mobilize research around the globe that helped to save millions of lives and reduce the stigma attached to HIV/AIDS,” Elton John, Founder of the Elton John AIDS Foundation (EJAF). “The legacy of Dr. Krim’s deep commitment to ending HIV/AIDS will live on in the advocacy, action, and compassion of those that follow her lead. We would not be where we are today without her, and we must continue to work tirelessly to further understand and prevent the disease. My thoughts are with her family at this time, she was a true hero.”

“For over three decades, I have witnessed one of the most remarkable women in my lifetime fight against the plague of HIV/AIDS,” longtime LGBT rights activist/author David Mixner, who was honored by amfAR. “Dr. Krim was there when no one else would even touch us. There was not one day in the fight against this epidemic that she wasn’t working by our side. Dr. Mathilde Krim was a true legend, heroine and a dear friend.”

“We have lost an inspirational, tireless, and catalytic leader of our movement,” said Mark Harrington, Treatment Action Group’s Executive Director. “Dr. Krim understood the gravity of the epidemic, in its earliest and darkest days, and was driven by her own remarkable intelligence, fierce commitment to civil rights and social justice, extraordinary social and political networks, and true grit to galvanize funders, scientists, policy leaders, and activists toward a single cause: ending HIV and AIDS as a threat to humanity.”

“I genuinely believe that we wouldn’t be where we are today without Dr. Krim’s brilliance, determination, and mobilization,” said Tim Horn, Deputy Executive Director of HIV & HCV Programs at TAG. “Beyond her unparalleled contributions to HIV/AIDS research fundraising and awareness, she was an interminable source of strength, support, and wisdom for countless activists over the years.”

“TAG has lost a matriarch of our family, a leader in our movement, and a steadfast supporter of our work,” said Barbara Hughes, President of TAG’s Board of Directors. “We mourn Dr. Krim’s passing and join amfAR and so many leaders in the fight against HIV/AIDS in remembering her work and life.”

TAG: Photo (bottom center): By Rob Klein, 2010. From left, Alby Maccarone (Director Emeritus), Dr. Mathilde Krim, Mark Harrington (Executive Director), and Barbara Hughes (President) at the 2010 TAG Research in Action Awards.

“Matilda Krim was a pioneering legend. Her compassion and foresight at the very beginning of the epidemic played a crucial role in mobilizing support to fight the battle against AIDS,” says Michael Weinstein, president of AIDS Healthcare Foundation.

“Even though Mathilde has been gone for a while from any active Public role, it does feel like the end of an era,” says Sean Strub, founder of POZ Magazine and out HIV-positive mayor of Milford, Pennsylvania.

“Mathilde used her resources, curiosity, tenacity and heart to provide leadership and build support to fund AIDS research at a time when few of her peers were willing to do so. The history of the epidemic is intertwined with her own; she was persistent, unflappable and prescient.”

“I became aware of Mathilde Krim around 1988, while I was working as the staff writer for the National AIDS Network, a coalition of community-based AIDS service organizations in Washington, D.C. By then Dr. Krim was already legendary in the HIV-AIDS community,” says John-Manuel Andriote, author of Victory Deferred: How AIDS Changed Gay Life in America. “It’s hard to overstate the importance of Dr. Krim and Elizabeth Taylor’s “mainstream” (and heterosexual) cachet in helping to ratchet down the fear and stigma associated with what then was a deadly new illness perceived as mainly afflicting gay men.”

“As an HIV positive man who has been living with the virus for over 13 years, I know that I would not be alive today without the efforts of Dr. Mathilde Krim,” says out New York City Council Speaker Corey Johnson. “I met her during my first trip to New York City, at age 18. Little did I know the important role she would play in my life. My thoughts and prayers go to the family and friends of Dr. Krim. Her legacy will live on in the countless lives she saved.”

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AIDS and HIV

Governor Newsom signs HIV & Aging Act authored by Sen. John Laird

Sponsors of SB 258 include Equality California, AIDS Project Los Angeles (APLA) Health, Services & Advocacy for GLBT Elders (SAGE)

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Photo Credit: Office of the Governor of California

SACRAMENTO – On Friday Governor Gavin Newsom announced the signing of Senate Bill 258, the HIV & Aging Act, authored by Senator John Laird (D – Santa Cruz). Senate Bill 258 will ensure HIV+ seniors are included in the definition of “greatest social need”.

“When I was the Santa Cruz AIDS Agency Director in the 1980’s, it was our dream to have people living with HIV live into old age,” said Senator Laird. “To be very clear, this group was not supposed to age. Governor Newsom signing the HIV & Aging Act is a historic moment for the LGBTQ community, and all those who have been affected by the HIV crisis.”

With the recent advancements in HIV treatment, people with HIV can keep the virus suppressed and live long and healthy lives. For this reason, the number of HIV positive older people is increasing. According to a 2018 California HIV Surveillance Report published by the California Department of Public Health, over half of the people living with the virus in California are now aged 50 years or older. This same report shows that 15 percent of newly diagnosed patients were age 50 and older in that same year.

Sponsors of SB 258 include Equality California, AIDS Project Los Angeles (APLA) Health, Services & Advocacy for GLBT Elders (SAGE), and the Los Angeles LGBT Center.

Sen. John Laird speaking at PRIDE with the LGBTQ Legislative Caucus June 2021 (Blade File Photo)

Equality California Legislative Director Tami A. Martin notes, “After surviving the darkest days of the AIDS epidemic, many Californians living with HIV are now over the age of 50, but in dire need of support. Thanks to Governor Newsom, Senator Laird and HIV advocates, the Golden State will now make sure that our elders living with HIV have access to food assistance, job training, transportation or any other vital services. We applaud Governor Gavin Newsom for signing the HIV & Aging Act into law, making California just the second state to ensure older Californians living with HIV don’t just continue to survive, but thrive.”

“Thanks to effective treatments, people with HIV are living longer than we could have ever imagined just a few decades ago and now a majority of people with HIV in California are over 50 years old. Unfortunately, our current health and social service systems are not yet prepared to address the unique needs of this population,” APLA Health Chief Executive Officer Craig E. Thompson said adding; “Many older people with HIV are long term survivors of the AIDS epidemic. They have lost countless loved ones and entire networks of social support. They also continue to face discrimination and alarming levels of stigma. We thank Senator Laird for his leadership on this historic bill to ensure that people aging with HIV have the resources and support they need to thrive and age with dignity.”

“We must ensure that LGBTQ seniors have the affirming care and support so they can age in peace with dignity,” stated Laird. “It’s incumbent upon us to not force individuals back into the closet for them to access adequate care. Once again, I’d like to applaud the Governor for his continued support of the LBGTQ community and to my colleagues for making this a priority bill.”

The HIV & Aging Act received unanimous bipartisan support through both chambers of the Legislature and is a legislative priority for the California Legislative LGBTQ Caucus.

Senate Bill 258 will go into effect January 1, 2022.

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AIDS and HIV

HIV & Aging Act sails through legislature; awaits Newsom’s signature

“When I was Santa Cruz AIDS Agency Director, it was our dream to have people living with HIV age into the senior category.”

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California State Senator John Laird (D-Santa Cruz) (Photo courtesy of the Senate of State of California)

SACRAMENTO —  The California Assembly passed SB 258, the HIV and Aging Act, by Senator John Laird (D-Santa Cruz), Thursday sending the bill to Governor Newsom for signature. The bill advanced from the Assembly consent calendar and received no “no” votes in either chamber.

Pending Governor Newsom’s final approval, California will become only the second state — after Illinois in 2019 — to designate older adults living with HIV as a population of “greatest social need.”

“When I was Santa Cruz AIDS Agency Director, it was our dream to have people living with HIV age into the senior category,” said Senator Laird. “To be very clear, this group was not supposed to grow old. While the drug cocktail transformed the fight against HIV, and there are more HIV positive seniors than ever before, older people living with HIV face a number of behavioral health challenges in addition to physical illnesses. By easing the burden of connecting this vulnerable population to supportive aging services and programs, this bill provides another life line to assist this uniquely disadvantaged group.

“I would like to express my utmost thanks to the sponsors of SB 258 for their steadfast partnership and the large coalition of supporters who highlighted the critical need for historic recognition and support of those living with HIV.”

With recent advancements in HIV treatment, people with HIV who take antiretroviral therapy can keep the virus suppressed and live long and healthy lives. For this reason, the number of older people living with HIV is increasing and over half of people living with HIV in California are now aged 50 years or older. However, older people with HIV continue to face unique challenges and barriers in health and well-being. A 2020 report by SAGE’s HIV and Aging Policy Action Coalition (HAPAC) identified that older people with HIV are more likely than their HIV-negative counterparts to have multiple comorbidities, including certain cancers, cardiovascular disease, fractures, and hepatitis C. Older people with HIV also face a number of behavioral health challenges, including rates of depression up to five times greater than their HIV-negative peers and greater levels of stigma, social isolation and loneliness.

“As a person living with HIV since 1983, I thank the Assembly for passing SB 258 – the HIV & Aging Act – recognizing older adults with HIV face unique and profound challenges as a population of ‘greatest social need.’” said Tez Anderson, Executive Director of Let’s Kick ASS-AIDS Survivor Syndrome. “For too long, survivors of the AIDS pandemic have been overlooked and forgotten. None of us imagined aging, but over half of all Californians living with HIV are aging and urgently in need of social services and programs which address our physical and mental health. I urge Governor Newsom to sign the bill and give us hope for a better quality of life.”

The HIV & Aging Act updates the Welfare and Institutions Code to ensure older people living with HIV — who are likely to turn to government and community-based services due to multiple comorbidities, behavioral and mental health issues and limited social support — have access to the programs and services administered through the California Department of Aging. The legislation is co-authored by Senators Toni Atkins (D-San Diego), Susan Talamantes Eggman (D-Stockton), Scott Wiener (D-San Francisco) and Assemblymembers Sabrina Cervantes (D-Corona), Alex Lee (D-San Jose), Evan Low (D-Campbell) and Chris Ward (D-San Diego) and co-sponsored by APLA Health, Equality California, the Los Angeles LGBT Center and SAGE.

“Thanks to effective treatments, people with HIV are living longer than we could have ever imagined just a few decades ago,” said APLA Health Chief Executive Officer Craig E. Thompson. “Unfortunately, our current health and social service systems are ill-equipped to address the unique needs of this population. Many older people with HIV are long term survivors of the AIDS epidemic. They have lost countless loved ones and entire networks of social support. They experience significantly higher rates of depression, anxiety and other comorbidities. They also continue to face discrimination and alarming levels of stigma. APLA Health urges Governor Newsom to sign SB 258 into law to ensure that California’s aging network is prepared to support the state’s rapidly growing population of people aging with HIV.”

“As the number of older people living with HIV continues to increase, so should our state’s commitment to support this resilient population,” said Equality California Legislative Director Tami A. Martin. “We are thrilled that SB 258 received overwhelming, bipartisan support in the California legislature, and we look forward to pro-equality champion Governor Newsom signing this timely bill into law. Older Californians living with HIV deserve to have the resources and support they need to thrive with dignity.”

“SAGE applauds California State Senator John Laird and his colleagues for taking action in support of LGBT elders and people living with HIV,” said SAGE Director of Advocacy Aaron Tax. “This legislation would update the Older Americans Act in California, which funds critical programs like Meals-on-Wheels, to designate older people living with HIV as a target population. As older people living with HIV continue to face challenges in getting the aging services and supports that they need, it’s time for the law to catch up with the aging of the epidemic. Everyone should have access to the aging services and supports that they need, regardless of their identity or HIV status. This legislation will bring us closer to that reality.”

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AIDS and HIV

UCLA Fielding School awarded $5.2 million in grants for HIV prevention

The grants will study the use of a variety of techniques – personalized, daily text message reminders; and individual and group counseling

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UCLA Fielding School of Public Health Photo Credit: UCLA

LOS ANGELES – A team of researchers co-led by UCLA Fielding School of Public Health epidemiology professor Dr. Matthew Mimiaga has received more than $5.2 million in grants from the U.S. National Institutes of Health (NIH) to develop and test interventions in the U.S. and Brazil.

The projects, funded by three separate NIH grants, all have the goal of reducing the spread of HIV, the virus that causes AIDS, through the use of antiretroviral medications for HIV primary (PrEP) and secondary (ART) prevention among sexual and gender minority groups.

“Whether used as PrEP for HIV negative individuals or as ART treatment as prevention for those living with HIV, antiretroviral medications are highly effective at reducing HIV acquisition and transmission, but its efficacy is highly dependent on uptake and excellent adherence,” said Mimiaga, director of the UCLA Center for LGBTQ Advocacy, Research & Health. “However, sexual and gender minority groups face specific barriers to PrEP and ART access, uptake, adherence, and retention in care. Because of this, we are testing interventions that are culturally-tailored to address the lived realities and barriers among these vulnerable groups.”

The grants, announced by the NIH this month, will study the use of a variety of techniques – personalized, daily text message reminders; video vignettes; peer navigation; and individual and group counseling – to facilitate access and adherence to antiretroviral medications among those who would benefit the most from its use. These grants will be implemented in Los Angeles County; Providence, RI; Boston, MA; and Rio de Janeiro, Brazil.

This will give the researchers a wide variety of data on how these approaches work for different populations, ranging from LGBTQ adolescents, ages 15-24, to transgender women, and men who engage in transactional sex with other men. Dr. Katie Biello, a Brown University behavioral and social sciences and epidemiology professor, will co-lead this work with Mimiaga.

“Our goal is to develop HIV prevention interventions that are highly scalable and sustainable in the real world,” Biello said. “As such, this work takes into account the future of PrEP and ART access, while simultaneously addressing the barriers surrounding access, aiding in navigating linkage to PrEP and ART care programs, and reducing barriers to, and building skills to support, medication adherence.”

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